#MEAction is an international network of patients empowering each other to fight for health equality for Myalgic Encephalomyelitis.

#MEAction is not structured like a traditional advocacy organization. They are a platform designed to empower patients advocates and organizations, wherever they might be, with the technological tools and training to do what they are already doing – better. The aim is to become a mass, grassroots organization by 2017.

ROUND 1

On 25th May 2016 Missing Millions took place as round 1.

Boston, Dallas, San Francisco, Seattle, Washington D.C., Raleigh, and Atlanta; in London; in Melbourne; in a Canada-wide virtual protest; in Bergen, Norway; and in Belfast, Northern Ireland.

Impromptu shoe displays popped up in Ottawa and the Netherlands. Thousands of patients, caregivers, clinicians, and stakeholders raised their voices together to demand better funding, better medical education, and government oversight for this overlooked, underfunded illness.

There was unprecedented media coverage for the protest.  Including meetings with government officials as part of a coordinated effort from multiple advocacy organizations, meeting with over 20 U.S. Congress members and numerous HHS officials to discuss the demands, and the way forward. The protest was in the form of shoes being displayed, depicting the people missing from life due to ME/CFS/Fibro.

ROUND 2

This took place on the 27th September 2016.

25 cities in nine countries demanded change. ME Action presented protest demands asking for increased government funding for research, clinical trials, medical education and public awareness.

#MEAction is an international network of patients empowering each other to fight for health equality for Myalgic Encephalomyelitis.

#MEAction is not structured like a traditional advocacy organization. They are a platform designed to empower patients advocates and organizations, wherever they might be, with the technological tools and training to do what they are already doing – better. The aim is to become a mass, grassroots organization by 2017.

ROUND 1

On 25th May 2016 Missing Millions took place as round 1.

Boston, Dallas, San Francisco, Seattle, Washington D.C., Raleigh, and Atlanta; in London; in Melbourne; in a Canada-wide virtual protest; in Bergen, Norway; and in Belfast, Northern Ireland.

Impromptu shoe displays popped up in Ottawa and the Netherlands. Thousands of patients, caregivers, clinicians, and stakeholders raised their voices together to demand better funding, better medical education, and government oversight for this overlooked, underfunded illness.

There was unprecedented media coverage for the protest.  Including meetings with government officials as part of a coordinated effort from multiple advocacy organizations, meeting with over 20 U.S. Congress members and numerous HHS officials to discuss the demands, and the way forward. The protest was in the form of shoes being displayed, depicting the people missing from life due to ME/CFS/Fibro.

ROUND 2

This took place on the 27th September 2016.

25 cities in nine countries demanded change. ME Action presented protest demands asking for increased government funding for research, clinical trials, medical education and public awareness.