This April ME Support in Glamorgan invites you to #SpeakforME.
To speak out for the 250,000 people suffering from ME in the UK.
To speak up for the quarter of sufferers who are housebound.
To speak for an invisible illness that devastates lives.
Over the next four weeks #SpeakforME aims to raise awareness of Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome, here in Glamorgan and beyond.
To raise awareness, we’d like to start a conversation on social media about ME/CFS ahead of ME Awareness Week 2017 in May. So this year we are inviting you to follow, share, and tell us why you #SpeakforME on Twitter and Facebook.
To run the campaign, we have teamed up with a group of postgraduate students from Cardiff University. Together, we have been recording a set of interviews to release over the next four weeks with our Chair Christalla, Julie Morgan AM, a carer called Dee, and two sufferers named Emelyne and Mary.
You can watch the first interview with Christalla Bailey who charts her journey from sufferer to Chair of MESiG here on the website this Wednesday.
Next week’s interview is with Julie Morgan AM in the Senedd who told us, “I #SpeakforME because I know that it is a largely hidden illness. I’ve been approached by many people in my constituency so l know difficulties that ME sufferers and their carers go through. So I am pleased to speak out for ME so that it will be recognised as the serious illness that it is”.
Keep a lookout here on the #SpeakforME page, Twitter, Facebook and YouTube for updates, including more details about our awareness concert on May 13th. You can also keep informed with the campaign on the students #SpeakforME blog.