MESiG Library and Resource Centre

At MESiG we offer a wide range of literature to keep you informed

We operate a library which offers books about M.E / C.F.S, therapies to try, coping with stress, recommended diets, personal stories from members who have worked to find methods which enable them to cope and more.

For the cost of postage members can borrow books to include M.E / C.F.S ‘and related conditions’.

The books we currently have to offer:

  • M.E, Chronic Fatigue Syndrome and Fibromyalgia – The reverse therapy approach by John Eaton
  • Chronic Fatigue Syndrome -There is a cure by Patricia Jane Taylor
  • Help yourself to happiness by Keith Were
  • Surviving M.E by Joyce Fox
  • Living with M.E. by Dr Charles Shepherd
  • The Fibromyalgia Cookbook by Shelley Ann Smith
  • Chronic Fatigue Syndrome – A natural way to treat M.E by Professor Basant
  • The Chronic Fatigue healing diet by Christine Craggs-Hinton
  • Secrets to recovery by Alex Howard
  • Support for sufferers by Hazel Stapleton
  • When you want to say yes but your body says no by Liz Tucker
  • Coping with Lyme Disease – A Practical Guide To Dealing With Diagnosis And Treatment by Denise Lang
  • Say no to Arthritis by Patrick Holford
  • From stress to success by Dr John F. Demartini
  • Falling through the world – A gripping journey by Rachel Clarke
  • Living with Fibromyalgia by Christine Craggs-Hinton
  • Pain free – A revolutionary method for stopping chronic pain by Pete Egoscue
  • Recovering from M.E – A Guide To Self Empowerment by William Collinge
  • Dear Stranger by Anastasia Palmer
  • Pain free for women by Pete Egoscue
  • The Fibromyalgia healing diet by Christine Craggs-Hinton
  • Chronic Fatigue Syndrome, M.E and Fibromyalgia by Dr David Mickel
  • Stop thinking start living by Richard Carlson
  • Overcoming Chronic Fatigue, a self-help guide using cognitive behavioral techniques by Mary Burgess
  • How to stop worrying by Frank Tails
  • Candida Albicans – Could yeast be your problem? by Leon Chaitow
  • We’re not benefit scroungers by Aida AleksiaIt
  • Recovery From CFS-50 personal stories by Alexandra Barton
  • Where’s your faith? – Just believe by Ken Bailey
  • Could be allergy and it can be cured by Phillip Alexander
  • Better recovery from viral illnesses by Dr Darrel Ho-Yen
  • Link to life M.E by Kevin Mulhern
  • Eat to beat fatigue by Jane Harries
  • The IBS handbook by Bill Habets.
  • Fibromyalgia & muscle pain – What causes it, how it feels and what to do about it by Leon Chaitow
  • Help yourself to happiness by Keith Were
  • Gut instinct, what your stomach is trying to tell you by Pierre Pallard

Should you wish to borrow any book from our library please contact Chris Bailey.

Additional Literature

Details on any additional literature available with regards to M.E, CFS and Fibromyalgia can be found on the Action for M.E and M.E Association websites.

Current literature available:

Information Sheets

  • An overview of M.E
  • Guide to welfare benefits
  • ESA: filling in the form
  • ESA: reconsiderations and appeals
  • Supporting medical evidence for ESA
  • Permitted WorkDLA: a guide to filling in the form
  • DLA: revision and appeals
  • DLA face-to-face medicals for adults and children

Booklets

  • All about M.E – an introduction
  • Newly diagnosed with M.E
  • An employers guide to M.E and work
  • M.E and work
  • Caring for somebody with M.E
  • Implementing the Care Act for people with fluctuating, long-term conditions
  • Your child and M.E 2003 – For parents and families of under 18s with M.E
  • Pacing for people with M.E
  • DLA for children under 16
  • Blue Badge
  • PIP: an overview
  • PIP: filling in the form
  • PIP: reconsiderations and appeals
  • Supporting medical evidence for PIP
  • Universal Credit: an overview
  • M.E in the workplace
  • M.E and higher education

Reports and Guides

  • M.E Diagnosis: Delay Harms Health (2005). Early Diagnosis: why is it so important. A report from the M.E Alliance. Only available to download free here.
  • Executive summary – M.E Diagnosis: Delay Harms Health (2005). Only available to download free here.
  • The Chief Medical Officer’s working group report on C.F.S / M.E – A guide (2002) can be downloaded here.
  • M.E / C.F.S and Fibromyalgia Delivery Plan  2015-2018 can be downloaded here.

For Professionals

  • British Association for C.F.S / M.E: Therapy and Symptom Management in C.F.S / M.E can be downloaded here.
  • The NICE Guidelines For M.E can be downloaded here.
  • The Scottish Good Practice Statement On M.E / C.F.S can be downloaded here.

Useful Links

Shopmobility

Cardiff Shopmobility provides electrically powered wheelchairs, scooters and manual wheelchairs to help people who have limited mobility due to permanent or temporary disablement, illness, accident or age, to shop and use the other facilities in the city centre.

NHS Expert Patient Programme EPP

This is a free Health and Wellbeing self-management course and workshop for people living with long term health conditions i.e. M.E / C.F.S. To find a course near you please go to the NHS website.

The Cardiff & Vale EPP Cymru Co-ordinator is Carol Young. Tel: 02920 335403.

City Centre Mobility Assistance and Disabled Parking

Free mobility assistance, helping you around the city centre. Do you need help to get around the city centre then look out for City Centre Mobility Assistance. A new electrical vehicle scheme offering an innovative travel solution to those who need help accessing the city centre. Their environmentally friendly vehicles can carry up to three passengers each and travel around the city on a flexible route.

Drivers can be flagged down by pedestrians wishing to use the service, and passengers will then be taken to their chosen destination within the city centre. In addition if you wish to pre-book a vehicle in advance you can call 02920 873888. This number can also be called for general enquires. For more information, visit the Cardiff.GOV website.

Information From Around The World

WASHINGTON DC – Beyond Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: Redefining an Illness.

Cardiff Christian Healing Ministry CCHM

Healing Rooms Cardiff

Healing Rooms provide a safe, caring and confidential environment where anyone can come to receive Christian prayer for all kinds of physical, mental, emotional or spiritual healing, through the name of Jesus Christ.

General advice for living with M.E / C.F.S we also recommend:

WAMES

A member of both the Wales Neurological Alliance and the Long Term Conditions Alliance Cymru. Through these alliances they keep up to date with issues that affect M.E, and make useful contacts and raise awareness of M.E in the NHS, Social Services, Voluntary sector and Assembly Government.

Website: wames.org.uk | Helpline: helpline@wames.org.uk | Tel: 02920 515061
WAMES (Young People) | Email: michelle@wames.org.uk
Chair: Jan Russell 01790 636515 | Email: jan@wames.org.uk
Enquiries: enquiries@wames.org.uk | Tel: 01970 636515
Youth and Care Officer: Sylvia Penny | Enquiries: sylvia@wames.org.uk | Tel: 02920 515061

M.E Association (Based in Buckinghamshire)

Website: meassociation.org.uk | Email: admin@meassociation.org.uk | Tel: 01280 818968 9.30am – 3.00pm
M.E Connect Helpline: 0844 5765326 10am – 12noon, 2.00 – 4.00pm and 7.00 – 9.00pm | Email meconnect@meassociation.org.uk

25% ME Group (Based in Ayrshire)

This group offers support for M.E / C.F.S patients that are in the 25% category and are usually wheelchair bound on. Such individuals are unable to attend support group meetings and are extremely isolated. The 25% M.E group can offer tremendous and much needed support to those people.

Website: 25megroup.org
Office: 01292 318611 9.30 – 5.00pm Monday – Friday | Email: enquiry@25megroup.org
Advocacy Worker: 01415 702938 11.00am – 3.00pm Wednesday and Thursday | Email: helenb.25megroup@virginmedia.com

MCS Multiple Chemical Sensitivity

Website: Multiple Chemical Sensitivity

The Hummingbirds’ Foundation For M.E and for patients to be accorded the same basic human rights as those with similar ‘Invest In M.E. Research’.

BRAME (Based in Norfolk)

Website: Blue Ribbon for the Awareness of M.E Tel: 01493 393717 | Email: info@brame.org

Action for M.E (Based in Bristol)

Memberships / General Enquiries: 01179 279551 9.00am – 5.00pm Monday to Friday Email: admin@actionforme.org.uk | Website: actionforme.org.uk

National M.E Centre (Based in Essex)

Tel: 01708 576250 Mondays between 11.00am – 1.00 pm | Website: nmec.org.uk | Email: nmecent@aol.com

Since February 2007 the centre no longer has a paid manager and the clinical service was suspended in May 2007. Occupational therapy, physiotherapy, nutritional input and counselling is still available to patients with a diagnosis. A Specialist Support Worker continues to offer advice, support and information by appointment.

Fibromyalgia Action UK

Website: fmauk.org National Helpline 0844 887 2444 10.00am – 4.00pm Monday to Friday Benefits Helpline 0844 887 2450 10.00am – 12.00pm Monday and Friday

AYME (Association of Young People with M.E) – Based in Milton Keynes

Helpline & Information Service Tel: 0330 2211223 | Email: helpline@ayme.org.uk
Main Office Tel: 01908 379737 | Email: info@ayme.org.uk Post: AYME, Tickford House, Silver Street, Newport Pagnell, MK16 0EX

The Young M.E Sufferers Trust

Tel: 0845 003 9002 | Website: tymestrust.org

UK Fibromyalgia (Based in Dorset)

Website: ukfibromyalgia.com | Email: info@fibromyalgia.com | Tel: 01202 295155

What Social Care Services Are Available

Information from the NHS website can be found here.

HIC – Healthcare Inspectorate Wales is the independent inspectorate and regulator of healthcare in Wales.

HIC want to hear about your experiences with healthcare services in Wales.

Website: hiw.org.uk | Email: hiw@wales.gsi.gov.uk | Tel: 03000 628163

Health In Wales

Website: wales.nhs.uk/nhswalesaboutus/aboutthiswebsite

Health in Wales is an outcome of a Patient and Carer Empowerment (PCE) project commissioned by Informing Healthcare (now the NHS Wales Informatics Service) for the Welsh Assembly Government to enable people in Wales to become far more involved in their health. One way is to provide reliable information about essential health matters.

Wales Help For Carers

Website

How to Access Occupational Therapy

NHS Website

Care Services

Cardiff.GOV Website

Carers Direct Helpline

NHS Website

You can call the Carers Direct helpline on 0300 123 1053 if you need help with your caring role and want to talk to someone about what options are available to you.

Carers UK

Website: carersuk.org/wales | Tel: 0808 808 7777

Other help and advice

Social Care Help:-

To access all information with regards Personal Care at home:-

  • Local social services dept
  • Support & information for carers
  • Home adaptions
  • Direct payments
  • Independent Occupational Therapist

Tel: 0207 989 0681

Go to dewis.wales  a website giving local information for Cardiff, Vale of Glamorgan and Rhondda Cynon Taff. Go to the ‘Site Map’ at the bottom of their home page to find your service.

Financial Assistance:-

Christians against poverty (run local courses)
Website: capuk.org | Debt Helpline: 0800 328 0006
If you are struggling to survive on benefits and need practical help & support, please contact the above number for a home visit.

Money Advice Service

Website: moneyadviceservice.org.uk | Tel: 0300 500 5000

For help with travel and transport:

National Rail Enquiries

Tel: 0843 515 8326 | Disabled assistance (advanced notice is required by the train operator).

Samaritans Helpline

24 hrs a day, 365 days a year
Whatever you’re going through call The Samaritans free any time, from any phone on 116 123

Help With Benefits

For Help with benefits, if you are having problems, need general advice or your benefit entitlement checked:

Citizens Advice Bureau

Tel: see telephone directory for nearest office
Website: citizensadvice.org.uk

Disability Benefits Centre UK

Blue Badge Scheme can be found at dewis.wales 

Benefits Helpline

Tel: 0800 88 22 00

Speakeasy Advice Centre

Tel: 02920 453111

Riverside Advice – Welfare Benefits Cardiff

Tel: 02920 341577

VEST – For help with local lifts and transport for the disabled

Tel: 02920 490325 | Email: vest@talktalk.net